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Rocky mountain spotted fever

Started by yukon cornelius, July 11, 2018, 02:33:05 PM

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yukon cornelius

I had been feeling bad for a while and finally broke down and got an appointment. It took a month to get in and they drew blood. They called the next day and said all was fine. I kept getting worse and could barely function. We were able to go online and read the lab results for the blood test ourselves. We saw RMSF positive HGG  H. Not knowing what that was we looked it up. It turns out it meant Rocky mountain spotted fever tested positive high numbers. We called and they had mixed me up witwithh someone else who had already had it and was treated. They immediately got me on antibiotics. I have been very sick. I have now lost 20 lbs since June 25th due to not being able to eat. I lost 9 of those from July 5th until yesterday. I am very ready to be feeling better.
It seems I am a coarse thread bolt in a world of fine threaded nuts!

Making a living with a manual mill can be done!

Magicman

I was wondering about you so thanks for the update.  Hopefully I will see you in three weeks.  8)
Knothole Sawmill, LLC     '98 Wood-Mizer LT40SuperHydraulic   WM Million BF Club Member   WM Pro Sawyer Network

It's Weird being the Same Age as Old People

Never allow your "need" to make money to exceed your "desire" to provide quality service.....The Magicman

DPatton

Hope the treatment gets you well soon.
TimberKing 1600, 30' gooseneck trailer, Chevy HD2500, Echo Chainsaw, 60" Logrite.

Work isn't so bad when you enjoy what your doing.
D & S Sawmill Services

Bruno of NH

Lt 40 wide with 38hp gas and command controls , F350 4x4 dump and lot of contracting tools

YellowHammer

I am very sorry to hear you have it. I had it, and as you are well aware it's mean.  Not to scare you, but I lost 30 lbs in a couple weeks, was paralyzed for 3 days, turned bright purple from internal bleeding under my skin (hence the name spotted fever), had other significant complications and stayed in the hostpital 10 days.  Simple Tetracycline/Doxycycline in massive IV doses cured it for me.   

Are you improving?  Have you developed the rash yet? Are you under the close care of a medical professional?  I very much hope you are and certainly will follow this closely.  I hope you get to feeling better!
YellowHammerisms:

Take steps to save steps.

If it won't roll, its not a log; it's still a tree.  Sawmills cut logs, not trees.

Kiln drying wood: When the cookies are burned, they're burned, and you can't fix them.

Sawing is fun for the first couple million boards.

Be smarter than the sawdust

thecfarm

Good luck to you. Good thing you looked at your test.
Model 6020-20hp Manual Thomas bandsaw,TC40A 4wd 40 hp New Holland tractor, 450 Norse Winch, Heatmor 400 OWB,YCC 1978-79

yukon cornelius

Thanks everyone. Well, I actually feel very dismissed by both doctors and the emergency room. They have all just sent me on the way patting the first doctor on the back for a "good diagnosis" in my opinion he diagnosed nothing . I had to fight for the care I have gotten. It is very painful, stressful and emotional. I was pretty certain i was going to die.  I am feeling stronger at times. I cannot drive because I get very confused and lost. I feel often i am going to pass out. I have a large swollen place on my left upper abdomen that looks like a deep bruise but under the muscle. It is hot and had sharp shooting pains. Headaches, body aches, fever, nausea, weakness, blurry vision, diahrea. this is nothing to mess with. 
It seems I am a coarse thread bolt in a world of fine threaded nuts!

Making a living with a manual mill can be done!

YellowHammer

You are right, this is NOTHING to mess with.  It was at one time called black measles, and had a very high death rate.  There were a couple books written about it, and the history of the disease, and the initial attempts to control it are fascinating.  

There were two of us in town that contracted the disease the year I had it, the other guy died.  These days, the mortality rate is relatively low, but the complications can be severe including major organ failure (my heart swelled up three times normal), gangrene, and other long term issues as the disease attacks pretty much everything in your body.  A quick look at Web MD will tell more than you want to know.

If you are not getting the medical care you feel you need, get it, somewhere, somehow. 
I would strongly suggest you see a doctor who knows these things in detail, and I was assigned an extremely skillful "Infectious Disease Specialist" who knew what he was doing.  

Good luck to you, please keep us posted.  
YellowHammerisms:

Take steps to save steps.

If it won't roll, its not a log; it's still a tree.  Sawmills cut logs, not trees.

Kiln drying wood: When the cookies are burned, they're burned, and you can't fix them.

Sawing is fun for the first couple million boards.

Be smarter than the sawdust

Ed_K

 Now a day you have to be aggressive when you talk with medical doctors and staff. I've had problems with medical staff not relaying information and when confronted they out right lied to upper staff saying they gave us the information needed. That's why Rita goes with me on every appointment. I may miss things because of my sickness but I know Rita won't.
Ed K

IMERC



Adamant and tenacious works better...
Who ever invented work didn't know how to fish.... Here fishy fishy....

yukon cornelius

I have been back to the emergency room with severe abdominal and kidney pain and was told to" suck it up " The physician read me the description of RMSF and side effects off his phone and then asked "what do you want me to do about it? I tried to explain that I don't go to the doctor or emergency room for just anything and that I had never felt so sick before. He just shrugged and walked out. He came back asked what would make us happy so I said I want someone to check me and help me find out if I am actually ok or not. he never looked at it touched either area. He sent us on our way.

This was On Saturday. I still feel terrible and have times of feeling really terrible. But, maybe I am starting to get stronger. 

I have decided to stop going to the doctor. God will either heal me or take me home. I am ready for either. 
It seems I am a coarse thread bolt in a world of fine threaded nuts!

Making a living with a manual mill can be done!

YellowHammer

Don't give in. It's your health, pain and suffering, not his. Go find another doctor next big town over. Then go find a good lawyer.  
YellowHammerisms:

Take steps to save steps.

If it won't roll, its not a log; it's still a tree.  Sawmills cut logs, not trees.

Kiln drying wood: When the cookies are burned, they're burned, and you can't fix them.

Sawing is fun for the first couple million boards.

Be smarter than the sawdust

Magicman

I agree with YH.  You need to be making a trip to Kansas City, maybe even instead of to the Pig Roast.  Right now your health is your most important priority.
Knothole Sawmill, LLC     '98 Wood-Mizer LT40SuperHydraulic   WM Million BF Club Member   WM Pro Sawyer Network

It's Weird being the Same Age as Old People

Never allow your "need" to make money to exceed your "desire" to provide quality service.....The Magicman

gspren

YC, You are much too valuable to your family and us to give up. Find a doctor that has experience with this and try again.
Stihl 041, 044 & 261, Kubota 400 RTV, Kubota BX 2670, Ferris Zero turn

yukon cornelius

I received a name for someone who specializes in tick diseases. I am going to check into that. I have times when I feel fine but weak and then an hour later I am feeling horrible again. Going out in the heat really sets it off. God is good and will take care of me. That is certain! 
It seems I am a coarse thread bolt in a world of fine threaded nuts!

Making a living with a manual mill can be done!

YellowHammer

That's great news. Keep fighting!
YellowHammerisms:

Take steps to save steps.

If it won't roll, its not a log; it's still a tree.  Sawmills cut logs, not trees.

Kiln drying wood: When the cookies are burned, they're burned, and you can't fix them.

Sawing is fun for the first couple million boards.

Be smarter than the sawdust

doctorb

That is a positive development.  Take the time and effort and see an Infectious Disease expert.  The ER will not be a place that can help you in this instance.  Best of Luck.
My father once said, "This is my son who wanted to grow up and become a doctor.  So far, he's only become a doctor."

East ky logging

Hope you're feeling better that is some bad stuff. Sounds like several members here has had rmsf and I would like to ask their opinion on something. I had it about 35 years ago when I was 12 and it was undiagnosed until I was almost over it. I almost died with it and Finally my kidneys started shutting down and whatever they was giving me for that helped me recover.
  My question is does anyone that has had it experience severe arthritis years later. I have been getting arthritis for at least 10 years and it's almost in every joint and almost disabling. I've asked the orthopedic doctor about that he he said he hasn't heard about that happening but anything could be possible.
They who can give up essential liberty to obtain a little temporary safety deserve neither liberty or safety- Benjamin Franklin

DPatton

Yukon, 

 Please take YH, doctorb's, and others advice to find a Dr. who specializes in this type of infection. I understand just how very frustrating it is when a person pays through the nose for treatment and isn't receiving satisfactory results. But sometimes you gotta pay up and bring in a second opinion to get adaquate treatment. It's time for that second opinion. Best of luck to you with this desease and please Keep us posted about the second opinion.
TimberKing 1600, 30' gooseneck trailer, Chevy HD2500, Echo Chainsaw, 60" Logrite.

Work isn't so bad when you enjoy what your doing.
D & S Sawmill Services

YellowHammer

East Ky, I am 53 years old and have left over side effects I sometimes attribute to the disease.  I did have mild arthritis onset at a relatively young age but I don't know if it's directly related.  I needed a hip replacement at 52.  My eyes were immediately affected, and I lost some visual acuity.  My skin burned and peeled off like a snake, which was pretty cool to see.  My immune system was whacked hard, and not right for years.  The RMSF is a really devastating disease, as evidenced by your experience.  It's like being hit by a train, but only on the inside.  

Although there are rare joint inflammatory disorders that can be triggered by RMSF, such as Adult Onset Still's Disease, (AOSD) most times severe joint pain due to tick bite is a fundamental symptom of Lyme disease, and can manifest years after being bitten.  

I would consult with an infectious disease specialist, a tick doctor, and get his thoughts and opinions.  

Ticks are nasty critters.  


YellowHammerisms:

Take steps to save steps.

If it won't roll, its not a log; it's still a tree.  Sawmills cut logs, not trees.

Kiln drying wood: When the cookies are burned, they're burned, and you can't fix them.

Sawing is fun for the first couple million boards.

Be smarter than the sawdust

yukon cornelius

I have an appointment with a highly recommended tick specialist in September. I have had a CT scan and a colonoscopy. The first doctor wants me to have exploratory surgery to find out why I have so much kidney and abdominal pain. I think not! I had a couple good days and then it was back with fury for a couple days. I went to a new doctor. She was very knowledgeable of this and I believe she is going to help me. She gave me something to get my GI tract lined out and something to help me sleep. I haven't slept much still but I was back in my feet today. She did not sugar coat it and tells me this may take a long time to get over. She said at least she could make me more comfortable while I am healing.

God is good and healing is in his hands. 

Thank you all for the kind words and encouragement. 
It seems I am a coarse thread bolt in a world of fine threaded nuts!

Making a living with a manual mill can be done!

Magicman

Thank you for the update.  My Prayers for you are for Healing Grace.
Knothole Sawmill, LLC     '98 Wood-Mizer LT40SuperHydraulic   WM Million BF Club Member   WM Pro Sawyer Network

It's Weird being the Same Age as Old People

Never allow your "need" to make money to exceed your "desire" to provide quality service.....The Magicman

YellowHammer

Good for you.  I'm glad to hear you are being pro active.  
YellowHammerisms:

Take steps to save steps.

If it won't roll, its not a log; it's still a tree.  Sawmills cut logs, not trees.

Kiln drying wood: When the cookies are burned, they're burned, and you can't fix them.

Sawing is fun for the first couple million boards.

Be smarter than the sawdust

Bruno of NH

I'm glad you found a Dr who will help you.
Prayers sent
Lt 40 wide with 38hp gas and command controls , F350 4x4 dump and lot of contracting tools

Ron Scott

Yes, a specialist in tick diseases is definitely needed.
~Ron

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