My cancer journey

[mike_belben]

Chin up ed, keep fightin.  

[Walnut Beast]

Hang in there Ed 👍

[Ed_K]

 I went thru my 2nd treatment last Tue with no problems. So the rest will go much faster, laying on a bed or sitting up 8 hrs is a long day. After Nov 1st I'm going to try a different way of getting the treatment where they will give me a shot into my belly over 3 to 5 mins and watch for reactions for a half hour and I'm out the door. It's shorter time and also safer.

[samandothers]

Shorter and safer both sound good!

[Bruno of NH]

Ed sorry to hear this you are a tough man.
You can do this.
Will keep you in my prayers Sir

[Bricklayer51]

Ed hope all the new proceders go well for you i go down to va in saginaw tuesday to try a get some very painful mouth sores fixed have not been able to eat or drink for going on six weeks

[gww]

Ed
Still hoping for the best for you and those around you.
Cheers
gww

[Ed_K]

 Bricklayer51, That scares me, I signed up with the VA.and from friends who have to work with them it seems they really don't want to do much to help keep us healthy. I've been using dry mouthmouth wash at night to keep the sores away but we have a product Orajel that I haven't used yet that Rita found at Big Y. I also suck on hard peppermint candies during the day. 6 weeks  that's awful  :(, I hope the VA. helps.

[Bruno of NH]

The Va in white river jct. VT is very good they helped my Dad alot.
One of the best ones if you can go there

[mike_belben]

It was better than nothing but my experience was always pretty bad compared to private HC.  One issue is that the specialists are regional, if you want to see a different one because the nearest just wont listen to you, youre gonna be driving awful far. 

[Ed_K]

 My x-chopper and his brother use va chopper goes to White River has has good luck and his brother goes to one way down to the bottom of Conn. has had good service both for cancer. But both are a long drive from us. Nothing in between for major service.

[Texas Ranger]

The turn over rate for docs here in my part of Texas is tremendous, you never know if the follow up will be with the same doc or not.  O even if there will be one.

[Ed_K]

 In Greenfield, Ma. the va has a clinic where you go for small stuff like shots and yearly physicals and it's the same I'm told, where you never know who you will see.

[mike_belben]

The one in leeds is probably the best. Springfield butchered me the most. They couldnt even stitch half decent.  Like blob of flesh with thread in it.  

[Ed_K]

 Went for my 4th treatment yesterday 10/27/20. when I got there was told I can't do it as my white blood cell were down to zero and many of the others were low also. the new treatment is taking a toll on me and making me short of breath and very tired. I did have a meeting with my new nurse practitioner, she schedualed a ct scan for today to check for blood clots. If anyone getting cancer treatments starts feeling like this don't wait thinking it will go away. The Dr. was also concerned saying next time call. Got to go I'll add more in a little bit. If anyone reading this, if you get short of breath for no reason get it checked out. I just got back from the hospital getting a ct scan and they were quite concerned. I have blood clots in the bottoms of both lungs so I'm on eliquis for awhile now. And yesterday I was out cutting cordwood chunks .

[Walnut Beast]

Ed your in our prayers and glad you got some spirit due to the circumstances 

[mike_belben]

Rest up Ed.  The woodpile is content to wait for you.

[Ed_K]

 Thanks guys, this really sucks cause I can't just sit around, work to me is play.

[thecfarm]

I am thinking of you!!

[mike_belben]

I hear ya.  I get crabby when i dont feel like theres any progress.

[Sedgehammer]

Thanks guys, this really sucks cause I can't just sit around, work to me is play.

I hear ya. sitting around drives one crazy that is use to like working at something. Kick it's butt though!

[Okrafarmer]

Ed, I just caught up with the last 4 years on here. I'm sorry to hear your struggle continues and has gotten worse again.

My wife had a major health problem, not cancer, but it was found eventually to be related to her father's exposure to Agent Orange. The Navy claims he was never exposed to it, but as you have pointed out, it may have been far more pervasive than people think. Debbie's holistic doctor was finally able to pinpoint this, as well as a long-term retention of polio from her polio vaccine as a child, locked inside her spinal fluid. Debbie was in a wheelchair for over five years, increasingly losing her mobility. Finally she was spasmodically losing the use of her hands. All the docs told her they coudn't help her, and didn't even know what the problem was. Until she came to the holistic doctor, who found the problems instantly, and gave her the holistic medicine to treat them. In just eight days, she was totally cured and got rid of the wheelchair. That was last summer. She has been totally healed. I tell you all this to say there is hope, and not always in the places you expect to find it. The med docs can often times get it done, so I'm not knocking them. Just saying no one person fully understands the human body well enough to always be the one to get you fixed up.

Also, there's a massive God element here. Never underestimate His power.

Anyway, hang in there, I'm praying for you today since I saw this again. 

Jim

[Ed_K]

 @Okrafarmer, it was my dermatologist who came up with the question of agent orange. If you see tanker planes dumping water on fires out west it's easy to see how a plane could drip after coming back to land and dripping on the ground that I worked in. I trying to get into va medical to help pay some of the cost of treatments if that works I'm going to bring up the a o to see what they say :(.

[Okrafarmer]

Ed a lot of people have been rebuffed in the past when they bring up the AO at the VA, but there have been some changes there recently. I hope the shakeup in the organization might bring some better results.

Debbie's dad has still not been properly diagnosed at the VA or by any other medical doctor.

He and Debbie's mom are supposed to be flying here from France Friday (they're missionaries) if their flight hasn't been cancelled due to the new covid lockdown in that country. We hope to get him in to see Debbie's holistic doctor to see what can be done for him. 25 years of no answers is not fun. He's not had cancer, just a very debilitating neurological disorder that has caused him to slowly lose control of his motor functions. He is constantly in pain, and on a whole bunch of meds, etc.  They were able to eliminate some of his meds recently, which is good. At any given time, he almost always has two or three random muscles cramping. As one releases, another begins. He has preached the Gospel over there for 38 years. It's hard for him to leave the ministry, but they are trying to retire.

Anyway, I'll pray for you again this morning, and I hope the Lord provides a new breakthrough for you.

[Bricklayer51]

Ed i been in the va system a long time its been good they found my first cancer back then you had to travel for treatment i had to go 3 and half hours one way with this new round thanks to pres trump im able to do treaments in town at local cc center the va has a list of cancers caused by ao you should have a county va rep to help with paperwork they are great use them wish you luck dont give up iam still having big problems but hopeful.randy