myasthenia gravis

[farmfromkansas]

  Was diagnosed with this condition yesterday.  Been having issues for the last 6 months and more, but the doctor thought I had a stroke.  Had a CT scan and 2 mri's looking for it.  Finally the optamologist had me do some blood work and found this thing.  Google has quite a bit of info on it, so reading up.  Was planning to have a woodworking retirement, maybe the medication will help. Myasthenia gravis

[thecfarm]

I hope the meds will help. 
Seems like a rare thing to have.
I will be thinking of you.

[B.C.C. Lapp]

Sorry to hear this farmfromkansas.   At least you know what your dealing with now and be treated.  Heres hoping the treatments can help and keep us posted.

[Nebraska]

Prayers for you, hoping the meds help. 

[Don P]

I had to look it up. I hope you can control it well enough to keep doing what you want to.

[farmfromkansas]

Thanks for the encouragement.

[OlJarhead]

I'm so sorry to hear this!

When I was in the Gulf they gave us Pyridostigmine Bromide (we called it PB later) to combat nerve gas.  I later did research and learned it was experimentally used on patients with MG but didn't work well.

As I recall it is a disease which causes the loss or lack of production of enzymes but I can't totally remember since I did all my research back in 92 when I was really sick.

I hope and pray they have new meds today and that they work for you!
Erik

[farmfromkansas]

Had a catscan of my thymus gland on Friday.  Read that sometimes the gland gets a tumor and makes things crazy.  Hoping it has a tumor so can get it removed.

[RetiredTech]

 Sorry for that diagnosis. Will be praying for you.

[Ianab]

I guess the positive thing is that once you are diagnosed, there are then treatment options. Seems no cure as such, but there are medications and procedures that control the symptoms before they get too serious. 

[doc henderson]

Thinking of you FFK.  Let me know if I can help.

[farmfromkansas]

Got a call from Dr Weiner today, he said there is no tumor on the thymus gland, but they found one on the pabcreas.  Said that this is the best time to find it, when there are no symptoms. Wants to get something going next week.