My cancer journey

[doc henderson]

is it an M or U before the G?  0.088 mg (milligram) is the same as 88ug  (microgram).  I doubt  a pharmacist would give you 88 mg of thyroxin.  higher doses are used to suppress thyroid cancer, but not that high that I know of.  you would be shaky and loosing weight and unable to sleep on that dose.  a standard dose for many/most patients is 0.1 mg or 100 ug.  the same thing.  you gotta love the metric system.  you can call your pharmacist to find out for sure.  it is also 0.0001 grams or 0.0000001Kg.  there could be an s after indicating pleural  i.e. mgs (milligrams).

[Ed_K]

 Morning Doc. I just went and looked an it says 88 mcg. Thanks for posting this. Now I feel better an Rita will when I tell her after church.

[doc henderson]

well, it is hell getting old Ed!      Glad to help.  Doc.

[Ed_K]

 Well I'm trying something new. Acupuncture, the pain that comes with some of the meds is unbelievable, and my MM Doctor said the only thing to do is try upping the pain pills by 15mgs.

 I've been to 5 sessions so far and it's changed my how I feel and how I'm living. The pain is much much less, I feel like I'm 50. Only if the rain would quit I could get some things done around here.

[thecfarm]

I'll have to try that, if it makes me feel younger.
Glad you are doing better!!!!

[Walnut Beast]

Well I'm trying something new. Acupuncture, the pain that comes with some of the meds is unbelievable, and my MM Doctor said the only thing to do is try upping the pain pills by 15mgs.

I've been to 5 sessions so far and it's changed my how I feel and how I'm living. The pain is much much less, I feel like I'm 50. Only if the rain would quit I could get some things done around here.

That's awesome! People think that kind of stuff doesn't work but you know it does!! That's what counts. 

[Ed_K]

I've been to 8 acupuncture session and when Rita puts out my pill for tonight and tomorrow she's dropping the Hydromorphone and Tramadol pain pills I take. This is to see if it's the acupuncture or the pain pills that have really made a difference.  Now if we could make the temp come up a few °s.

[samandothers]

I've been to 8 acupuncture session and when Rita puts out my pill for tonight and tomorrow she's dropping the Hydromorphone and Tramadol pain pills I take. This is to see if it's the acupuncture or the pain pills that have really made a difference.  Now if we could make the temp come up a few °s.

I wish you the best of luck with your treatments!  I bet you don't miss the pills!

[Bruno of NH]

Keep us posted on how it works

[Bricklayer51]

hey Ed good to hear some positive in your camp   had to go to er early dec found some new cancer left lung so had a ct scan saw my doc tuesday got it in both lungs maybe back in brain and stuff in spine maybe moving  go for a pet scan tuesday see doc on thursday to find out we are going to do   geez that and the neuropathy and now my thyroid is on the va ao list ill let you know how it turns out  

[Ed_K]

 Geez, sorry to hear this. It's always the same thing, as soon as you get things going the right way something comes up to go the wrong way.

[Bricklayer51]

Hey Ed hope this finds you well   i saw in a vfw or dav magazine that melanoma is on the list for comp  not sure if for vnv or the younger guys you should check with your vso   after all my pet and mris scans cancer has come back everywhere  ill be headed to midland mi mon morn for gamma knife back home tuesday wed radiation  5 times for neck and spine  the back into chemo for lung  the doc said if the moon stars and everthing lines up i got mabe a year 

[Magicman]

My Heart and Prayers are with you guys as you make this journey. 

[Bricklayer51]

Thanks Lynn that means a great deal

[samandothers]

Bricklayer51, 
Sorry to hear of what you are having to go through.  Sounds like you are pushing through and doing what you can do.  Prayers for strength and healing for you guys. 

[Bricklayer51]

thanks its been al;most 3 years so ive been lucky seems like most vnv with these ao cancers make 3 to 5 years so im blessed

[doc henderson]

bricklayer, I wish I had info that could help.  just know that despite the treatment that you and many came home to, you are considered a hero by us and we thank you for your service.  At least you made it home and have lived long enough to hopefully feel respected for the job you were asked to do by this country.  Godspeed!

[Bricklayer51]

thanks for the kind words Doc it was a long 2 days glad to be home they zapped 5 tumors  they start on my spine tomorrow here proud to be a part of ff god family country this is Eds thing so im out of here until i find more info that may help

[Ed_K]

 Gees Bricklayer51, I just got back to read your post, I'm praying for you. I know what the radiation treatment is like. I had two tumors on my neck and spine they blasted a yr ago and you can still see the suntan marks.

 I hope they alighned the rays so you can eat. Let me know how your doing.

 My acupuncture seems to be working,we dropped the oxycontin back from 45 to 30 last monday and so far I haven't had an increase in pain.
 We finally got an appointment with a real cardio Dr. She had a cardiogram done right when we got into the exam room. I have been complaining about pressure on my heart and no air when I bend over, I lose all my energy at the same time. She looked over the paper work that came back after I wore the heart monitor for 3 days and said there's nothing wrong other than some thickening of the heart walls, but not enough to do anything. All the Doctor's are puzzled about my heart rate, it runs around 120-130 all the time when I walk around or work doing cordwood. It was 242 one day when I walked from the building I get my pill at to the building that you go to for sick call. I went there to find out why my shoulder hurt so much. They called the ambulance on me and sent me to the main hospital that I go to. By the time we got there my pulse was down to 112 and the NP wanted to know why I was there, ha ha on the VA doc's. It's 92 right now while I sit here typing.

 Every one have a great day. 

[Walnut Beast]

Prayers for both of you guys!! 

[Bricklayer51]

Ed good to hear from you  dont forget to check with your vso about the melanoma   getting ready to go to town for radiation on my neck and spine next three days  then back in chemo  all we can do is tough it out until we cant  good talking with ya 

[Ed_K]

 Bricklayer51, Back in 2021 we put in for Agent Orange, melanoma and audio. They knew I have multipul myeloma cause I was getting some of my meds from the va. I got a notice in June of 22 that said they where giving me 100 % disability. Told them I've been sick since 2016.

[Bricklayer51]

That is good to hear im getting ready to go to town for number 5 and last treatment getting hard to swallow  and bad heartburn probably find out when i go back to chemo 

[Ed_K]

 Well i'm finally awake enough to post some goings on. Awhile back I had to switch chemo treatments to a drug called Ninlaro I can't remember when I changed over from the pomalyst It's been over a year ago, anyway the ninlaro has a side effect of making me tired. After a yr or more it's now making me so tired that after taking the medicine three day's later I can't stay awake, for three or four day i'm out of it sleep all day all night.

 With all that's going on with appointments for this and that and Rita having to take care of her older brother, he's 85 and can't take care of his self, has problems with water, swelled up legs and her trying to get help for him, he's back in the hospital again. And she's trying to get him into a nursing home so she can settle back to taking care of me. I had a talk with my VA eye doctor about my left eye having drooping eye syndrome and he gave me a referral to an eye specialist who said he could fix it.

 Here's a scare picture.

 

 
 Tired again, I'll try to get back here sooner for more information.

[Jim_Rogers]

Get well soon.

Jim Rogers